Taevin's medical procedures / surgery

Taevin has been having a lot of medical stuff going on in the last several months.

* In September he had a sleep study to find out if he has sleep apnea. He was hooked up to about 20 different tubes or wires. It was a very long night with very little sleep for either of us.

9/1/11

Test results show that he does have obstructive sleep apnea which causes him to stop breathing.

* The next test he had was to measure the severity of his reflux. They put a probe down his nose and monitored him for 23 hours. It was another very long day with very little sleep and lots of pushing him in the stroller to keep him happy.

Results showed an increased amount of non acid reflux. Next step will be to see if it is causing damage to his throat or vocal cords.

* The next procedure was a catheterization for his heart. His pulmonary arteries are not growing well and he needed two stents placed to expand them. It's amazing to me that they can do this procedure without opening him up.

10/3/11

By doing this procedure it increased his blood flow by 40%. This should help postpone open heart surgery for a while longer.

* The next thing was surgery to remove his tonsils and adenoids along with looking at his airway, vocal cords, throat and stomach. The tonsils and adenoids were removed to help/stop his sleep apnea. They also did a biopsy to check for damage from the reflux.

11/7/11

They did not find any damage from the reflux, thank goodness, but they did find that his airway has not grown much and is narrowed by 65%. They also found another problem that might require surgery in the next 6 months to 1 year. As for the sleep apnea we will have to wait and see if the surgery helped.

He did start to bleed a week later from his incision site and they needed to go back in to stop the bleeding so it might be a while before we know much.

I'm praying this is all for a while. It has been a very long and stressful 3 months and I think we are all due for a break, especially Taevin.