On Thursday the ladies from church had a little party to celebrate Taevin entrance into the world. They had some games, yummy refreshments and cute gifts. Thank you to all of you for your loving support, your prayers, the gifts and all that you have done for us! We truly are blessed to have such great friends.
That night after I got home we had some major drama with Damian's mother (see me for details) which resulted in me having to take the girls to Chicago with me for Taevins doctor's appointments. So bright and early ( 5:30 ) Friday morning we were off to Chicago. Traffic wasn't to bad and we got there a little early.
First was Taevin's cardiac follow up. They did an EKG, ECHO, chest x-ray, checked his O2 and listened to his heart. The only concern was the left vessel leading to the lung has a sharp turn which lets the blood flow a little less freely to that side. At this point it is nothing serious and they will be keeping an eye on it.
Next was the swallow study. Since he has so many issues with feeding they were concerned that he was breathing in the milk instead of swallowing it. What they do is give the baby breast milk or formula mixed with liquid barium. The baby is placed in a feeding seat and the fluoroscope table is tilted so that the response of the pharyngeal area during feeding can be captured as a permanent video image. ( I Googled it, just in case you were wondering ) we did this twice, first time the milk was thickened and the second time it wasn't. The test showed that he is refluxing ( you can aspirate the refluxed milk also) and having a hard time swallowing it all down (It takes him a few extra swallows then normal) and with the non thickened milk he was aspirating. So we need to continue thickening his milk and give him plenty of breaks so he can get it all down. We are scheduled to see the GI doctor on Monday and hopefully he will be able to give us some solutions to the acid reflux problems.
What a long day, we finally made it home around 2pm to an extremely hot house. The A/C broke and is going to cost either $1000 to fix or we will have to get a new one. "Come what may and love it"
2 comments:
Oh so sorry to hear you having to go through all of that and to come home to no AC would just be the kicker...call me anytime and I will watch your girls so you wouldn't have to take them to the appointments...even if it is early in the morning I would love to help you!! lots of love
I'm around to watch the girls too. I'm sorry about your AC. I have a cool house if you need to escape the heat for a bit!!
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